What is it like being a part of the CMS Facebook group?
What do your close family think of it?
Motor stereotypy Facebook groups:
For Parents and Caregivers of children with CMS: https://www.facebook.com/groups/motorstereotypy/
CMS Support Group: https://www.facebook.com/groups/196532617151150/
For Adults and Teens with CMS: https://www.facebook.com/groups/198622430747471/
For Parents and Caregivers of children with CMS: https://www.facebook.com/groups/motorstereotypy/
CMS Support Group: https://www.facebook.com/groups/196532617151150/
For Adults and Teens with CMS: https://www.facebook.com/groups/198622430747471/
It is very interesting being a part of the CMS Facebook group due to the support it gives. Unfortunately, I haven’t been able to get on very often due to going through some major life changes (I recently started attending college). My mom loves this group and thinks it is a great tool for parents with questions and worries so she thinks it’s cool when I talk about my CMS on the group.
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It is cool to learn about the experiences of other people with CMS, and also just to see all the things that we have in common. I also I’m glad to be able to give people the perspective of someone with CMS, which is pretty hard to find. My close family doesn’t know about the group. I’m not hiding it, it just has never come up.
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It’s great being part of this group. I’ve learned a lot and for the first time in my life don’t feel alone with having CMS. The few people in my family whom I’ve told about the group think it’s great. The only weird part about being in the group is when people are either extremely worried about their kid’s life being practically ruined by CMS or the opposite, which is thinking that people who have CMS are extremely special, spiritual, and so on. I don’t think either one is true. CMS doesn’t need to hold you back from anything, and it isn’t some sort of special gift.
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It was incredible, the first year I joined, to see more and more join the group so that I saw for the first time how not alone I was with this. I feel a lot of love for all those little children with it and am glad I can help the parents in sharing how it is to be one of those children. My sister is also in the group, so she is the only close family that I talk to about it.
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